Some people are shocked when I tell them that I am not going to reverse my stoma and become bagless. I’ve been told by quite a few people that because I’m a young woman I should try reversing my stoma however I’m choosing to make my stoma permanent and literally have a bag for life! I’ve had a few questions as to why I’m keeping him so I thought why not do a blog post on it!
*Discalimer : these are just my own thoughts based off information I’ve been given by my doctors! I’m just voicing my own opinions and hope to give some support to others going through the same decisions!
Lets start at the beginning with this. I currently have a temporary stoma with the option to either make it permanent and keep my bag or have a j pouch created which involves having an internal bag created. I have to choose one of these options but I’ve had the time to consider both and whichever I choose will be classed as elective surgery.
I’ve had a love hate relationship with my stoma but we’re mostly on the love side nowadays! It didn’t take me too long to get used to it and I have to say, I’ve gotten so used to having a bag – I have a routine with it and my actual stoma I have no issue with. My mucus fiscula on the other hand, which I’m getting rid off, causes me a few more issues which is why I can’t wait to have my stoma reversal! I’ve been very lucky with my stoma; I was happy with the positioning and apart from two little blockages (due to me trying and failing to eat mushrooms!), I have had no problems with it *touch wood*! I definitely think that because my ostomy surgery was so successful I am definitely more willing to keep the bag.
One of the main reasons I don’t really want a j pouch is that initially after surgery you can be going to the toilet up to 20 times a day. I’ve been there, done that and definitely do not want to go through that again! I’ve read some stories that people are still going to the toilet 10 times a day and it just gives me flashbacks to not wanting to leave the house during the days of colitis flares.
Another main reason I don’t want to have a j pouch is that the pouch might fail and I’ll end up with a stoma again and this time my stoma might not be as good as the one I have now. There’s also more and more surgery involved and I really don’t want that! Because my stoma works really well, I don’t want to risk getting a new one which isn’t as good. There’s also the issue of scare tissue and the more surgery you have, the more scare tissue which can effect you!
Would I like to have a bag free stomach again? Of course I would but the risks of j pouches and my own concerns mean I would way rather have a bag on my tummy. At the end of the day, my stoma not only saved my life but also gave me my life back and having a bag on your stomach isn’t that bad in the grand scheme of things (Most of the time!)